It's hard to believe and we are beyond blessed and thankful to say Ryan is now discharged from his PKU geneticist and nutritionist. His levels have been stable, he is on a unrestricted diet and he is as healthy as can be. We are still going to have yearly blood draws just for my piece of mind but overall, it;s a closed chapter in our lives. He has not been "cured" and PKU does not just "go away" but his body is tolerating a unrestricted diet. I will never forget the fears, the strugglesto get him to eat certain foods and all the tears (shed mostly by me). Ryan, you are a brave little boy and you are my hero. This kid never!cried during blood draws! Here is a pic of him at his last official appointment.
Monday, October 7, 2013
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